Talking to Autism “Advocacy” Organizations
I had the opportunity to speak, as a public comment, during a meeting of the Autism Society, Florida Chapter. It applies mostly to the National leadership because I think it is past time for some...
View ArticleDrop, Settle + Train
The American With Disabilities Act (ADA) is the law. Reasonable accommodations are disabled people’s rights, including when interacting with the police. San Francisco police force has training on how...
View ArticleUncontainable Presence
You are anywhere You are anytime Daring and enticing Changes unexpectedly predictable The obstinate constant I see your bright presence Piercing my eyes Crawling into my brain The pain comes swiftly...
View ArticleI Don’t Want Your Awareness
It is April again. The month when Autistic anxiety increase is directly proportional to the “autism awareness” marketing strategy. I am not being hyperbolic or snarky. In April, sales of blue lights...
View ArticleCelebrating My Life
I am writing this prompted by something John Elder Robison (I will refer to him by his initials, JER) wrote about Autism Awareness/Acceptance Month, in particular this quote: “We may have gifts too,...
View ArticleBeing Comfortable In My Skin
When I shared my post “Celebrating My Life” one commenter pointed out that “very few people are as comfortable in their skins” as I am. This got me thinking about what makes it possible for me to not...
View ArticleSynesthesia
Synesthesia I am a synesthete. I see colors and movement to music – to all sounds, actually but music makes everything prettier. I also see words, I can feel them. My synesthetic experience has always...
View ArticleOLLIBEAN : Acceptance, Love, Self-Care: #AutismPositivity2015
Autism Positivity is coming out of April stronger. Tired A little frustrated Spoonless. But stronger. Autism Positivity is rejecting blue lights, casting a red shadow and obscuring the blue puzzle...
View ArticleInspired? What Are You Going To Do Now?
You have heard it before. You may have said it. “You are such an inspiration!” “(Person’s name) is so inspiring!” I have heard it, and I have been the one supposedly “inspiring” people. And I...
View ArticleAbleism and Pity. Reject Them, Be Awesome
I have written about how I had to unlearn ableism. I have written about my uncooperative body. I always state how generally happy I am, and that I am comfortable being me. All this is true but...
View ArticleAccommodations – They Make All The Difference
Accommodations are important and they work. I should not be making a big deal about it. The ADA is 25 years old. Sadly, getting the accommodations we, disable people need, is often the opposite of...
View ArticleOn Not Being “Pretty”
My friend Cara wrote this awesome article about being “ugly” disabled. You should click on the link and read it. Go on, I’ll wait. Isn’t it great? The article got me thinking. Like Cara, I also...
View ArticlePrivacy, and Parental Behavior
I’ve written about this before: parents of Autistic children sharing very private information about their kids, sharing moments that show the kids being upset, or having meltdowns. These parents...
View ArticleAssumptions and Ableism
I’ve recently read an article about how some researches are slowly starting to debunk long held assumptions about autism, Autistics, functioning labels, and how the world needs to provide more...
View ArticleDisabled Lives and Respect
I thought I wouldn’t write about this case . I’ve been following it and the developments have been a sad reminder that disabled people are, in 2015, still seen, talked about and treated as less than...
View ArticleBigots
Bigots don’t have to right to demand “proof” of my competence, especially when they are dismissing my humanity by talking about me, without me. I demand respect.
View ArticleDisability Awareness Bewareness
Amy Sequenzia on Disability Awareness campaigns that silence the very people they claim to advocate for. I Am Aware of You I am aware of you Of your dismissiveness Of your hostility Of your badly...
View ArticleDisability, Dignity and Cost
Disability, Dignity and “Cost” by Amy Sequenzia Warning: I am going to mention “Right to Die With Dignity” legislation, my position, and other non black-and-white issues. I am against legislation that...
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